O BOLE DE SALÃO

In the remote and peaceful Salão, backcountry of Ceará, northeastern Brazil, a ghost has haunted the population: Huntington's disease. With one of the highest rates of affected people in the world, Salão has changed habits and behaviors to try to live with “Bole”. In the documentary “O Bole de Salão”, older residents, family members, the sick themselves and experts on the subject give moving testimonies about the rare, hereditary and incurable disease that has befallen the village and which still does not have public health policies in Brazil. In search of hope, but mainly support, a commission visited Pope Francis, who sympathized with the cause.